Thursday, December 8, 2011

Beating Autism.

Alone. Being alone always sounds like a great idea and the first 2 hours are great, I can lay around and watch TV without being asked a million questions. But after 2 hours its just lonely. John started his very first day of typical school today. It felt like it was his very first day of school (he's not even changing buildings just a different class room.... its even on the same floor) but I was so nervous, and to make matters worse I let his dad drop him off and pick him up. It shouldn't have mattered he's been to that school, walked in that door hundreds of times but today was different, today he was in the typical class. Two years ago I had this dream for him to go into a typical class by the end of elementary school, he did it less than 2 full years.
John is growing by leaps and bounds every day, I know he will do great things in life, but as he grows it's becoming more and more clear he was misdiagnosed with autism. I hate the term "misdiagnosed with autism", I don't feel it's far or right. He has (and still has to a much smaller degree) problems, but he has worked his tail off for over 2 years now, when other kids were on play dates John was stuck in rooms with specialists, other kids went to the zoo John went to early intervention, aba, floor time ect. He's worked so hard to come so far and to be told sorry kid it was all for nothing. No I don't accept that. I was at John's IEP meeting last week and the principle and teacher both suggested maybe John was misdiagnosed. No we were lucky, damn lucky that we caught John early, that we had the resources to get all the therapy he needed, that I made a choice to do everything in my power no matter what the cost. And let me tell you the price tag was high, my first marriage went up in flames mostly over not agreeing on how to handle autism, we lost our home because I had to be home for John's therapy, hell even when I remarried our wedding day was effected by autism, we gave up our dream wedding to be married earlier and have better support for the kids. Our entire life for the last 2 and half years has been autism, it consumed us just like a cancer patient's family is consumed with a diagnosis. But when your in remission your considered to have "beat it" but if you no longer fit the autism spectrum your misdiagnosed.. not in my book in my book John "beat it". So when we go back to the neurologist in a few short months and John is reevaluated and if he does not meet the "spectrum"  anymore I wont be mad that he was misdiagnosed, I'll do the same thing I did when my best friend "beat cancer" I'll throw a party, I'll pack our bags and go wherever John wants to go. I'll be prouder than I've ever been and I'll hold my husbands hand and say "we did it".

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